💙 The Medical Team Behind Duchenne Care 💙 When you live with Duchenne Muscular Dystrophy, it takes a whole medical team to keep one body moving, one spirit strong, and one family supported. It’s not just one doctor, it’s a network of specialists who each play a vital role: 🧠 Neurologist – leads the team, managing muscle and nerve health. ❤️ Cardiologist – monitors and protects the heart, which is also a muscle affected by Duchenne. 💨 Respiratory Specialist – helps support breathing as muscle

Just a few months after Harrison’s diagnosis of Duchenne Muscular Dystrophy age 2, our home started filling with disability equipment like this walker. It was designed to help him stay on his feet instead of crawling or knee walking anymore and keep him safe from falls. I understood its purpose, it made sense in theory, but wow, it was big and it was heavy and it was in our house. For my little toddler, it felt like too much and a massive freefall for all of us into the world of disability. On c

Tom has Duchenne muscular dystrophy, a rare and fatal condition that causes muscle weakness and a relentless deterioration in physical abilities. By 10 to 14 years of age, boys with Duchenne lose the ability to walk and require a wheelchair full time. They eventually become paralysed, depending on others for round-the-clock care. Tragically the disease is fatal. Work funded by a three year grant from Action, proved that a new type of gene therapy could potentially help boys and young men with Du