E.B. Awareness Week highlights rare skin disorder, local family share personal experiences
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E.B. Awareness Week highlights rare skin disorder, local family sha…
Oct 25, 2024
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WATCH🎥: Teenager Claudia shares her story of epidermolysis bullosa (EB), and asks for your support during EB Awareness Week! Debra Ireland Full story HERE: http://bit.ly/NationalEBAwarenessWeek | The Echo Newspaper
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WATCH🎥: Teenager Claudia shares her story of epidermolysis bullos…
9.2K viewsOct 24, 2019
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What is EB?
What is EB?
Oct 24, 2017
ebresearch.org
Spreading awareness for #EB on the streets of NYC 🦋 💖 Learning how to say Epidermolysis Bullosa could be the first step to fighting for a cure alongside us. | EB Research Partnership
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Spreading awareness for #EB on the streets of NYC 🦋 💖 Learning how to s…
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Day two of EB Awareness week.. EB IS A VERY RARE GENETIC SKIN DISORDER THAT CAUSES SEVERE BLISTERING INSIDE AND OUTSIDE OF THE BODY IN RESPONSE TO MINOR INJURY, RUBBING OR FRICTION. EB AFFECTS 1 IN EVERY 20,000 BIRTHS, EB IS ALWAYS PAINFUL AND CAN LEAD TO EARLY DEATH, THERE IS NO CURE OR TREATEMENT AS OF TODAY. LETS CHANGE THAT ! #fyp #foryou #awareness #missingyou | MarkyStrong
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Day two of EB Awareness week.. EB IS A VERY RARE GENETIC SKIN D…
25.3K viewsOct 25, 2023
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Did you know? Epidermolysis Bullosa is often called "The Worst Disease You've Never Heard Of." This rare condition affects about 1 in 20,000 live births, causing skin to be so fragile that even a gentle touch can lead to painful blisters and wounds. 💔 At EBRP, we're on a mission to change that. Together, we can turn awareness into action and turn "The Worst Disease You've Never Heard Of" into "The Worst Disease That We're Curing". 💙 Learn more at ebresearch.org. | EB Research Partnership
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